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Showing posts with the label Invisible and Chronic Illness

Spoonie Culture and the Backlash of Misunderstanding from Other Generations

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  Spoonie Culture and the Backlash of Misunderstanding from Other Generations Picture credit: Carenity.com Chronic Illness is difficult to explain without sounding like a medical dictionary at the best of times.  Especially when it comes to simply not knowing how to describe energy levels or the lack of focus, especially if you don’t have a diagnosis. Many like me have started to adopt the Spoon Theory to explain how much focus, energy, emotional strength and motivation we have. It was originally thought up by another who has a chronic disease, Christine Miserandino, who lives with Lupus - a disability where the defensive antibodies attack the body’s useful cells, thinking them a threat to the immune system.  This limits what they can accomplish on bad days compared to good ones, but it varies from person to person.  Struggling to explain this to her friend, Miserandino eventually gazed around the cafĂ© they were at and started to explain using spoons from the avail...